Thursday, July 26, 2012

Do I live on earth with everyone else?

Why is it that I feel like I'm the only one one the planner that has to deal with what I deal with on a daily basis? I'm not one to complain but I just feel like a prisoner and when I don't feel like a prisoner I feel like all I do is fight with everyone about what my sons need.

I am so tired. I know our lives will never be "normal" again but can I just get it under control? I feel like nothing is under control. I have headaches every day from the stress.

I know I can't be the only person. I see other special needs parents out in public and everything looks so normal. They go to restaurants and the library and movies. Why can't we do that?

Monday, July 23, 2012

Getting very annoyed

Today has been an exhausting day. Why do I feel like no one can figure out what's wrong with Tito? I feel like they don't know so they ate just passing him from one specialist to another. Why does my sons vomit 6-7 times a day? We have done an upper go and a video swallow and now been to the allergist. How ma ny more people do we have to go see and to hear ummmm you need to see GI? Well no dip!!!! His GI doctor is the one sending us to all you morons. I'm very upset at this point and annoyed. Now they wanna do a scope so they can come back and say hmmmm that yeilded nothing. Then the GI doctor says he may have some syndrome but Don't tell me which one so I can research it. Ughhhhh! What the hell is wrong with my baby? Just tell me already!?!

Saturday, July 21, 2012

My wondering thoughts!

Today has just been crazy. I have tried to keep busy and nor let my thoughts run away with my but I cant help it. Tito has an appointment Monday with the allergists and I know by reading the papers it can't possible be a nice test. I can't stand to watch that scared look on his face when he doesn't understand whats going on. Then it makes me sad that he thinks I am letting them hurt him.

As if that's not bad enough I still have 7-10 business days to go before I will know whats going on with Pedro's EEG test. I am scared out of my mind. He has a lump on the back of his head that his father and I keep watching get bigger and bigger. He has had it since birth but all of the sudden the last few months it just gets bigger. He's always complaining of headaches and leg pain. Now that I am waiting on a neurologist to call me I can't stop thinking about it.

I really think my brain is spinning out of control and that maybe I need to see a doctor for myself. But then that means I'm not strong and I have to admit defeat. And I will not do it. I can't I have to be strong for my kids. We will survive and everything will be OK. It has to be

Friday, July 20, 2012

Matteos world living with Autism: Fundraising!

Matteos world living with Autism: Fundraising!: Dear Friends and Family, Our son Matteo Chavez has autism, a disorder involving a spectrum of symptoms causing impaired and delayed learnin...

Calm my mind

It's been a long time since I have posted but I have had alot going on in my life lately. I thought once my angels testing was over that our lives would continue on as planned. Boy was I ever wrong about that. Now adays it just seems as if its one thing after another. It seems as every time one of my boys has a doctors appointment or test they need something else done and there is something else I have to worry about. Baby Jorge (tito) has an appointment coming up at the allergy clinic and then back to the GI doctor. I am not too happy about the GI appointment because we are now waiting to hear if my baby has some kind of syndrome. Dr. Gisser wouldn't tell me what kind of syndrome because he knows I would research it before the next appointment. So now I am just waiting and hoping its not something bad. They are also talking about the fact that he drags his right let that he may need to see a neurologist. WTH?!? Anything else?

Now am am worried to death because they think my other son Pedro is having seizures and he recently had psych testing done that revealed he has Disruptive Behavior Disorder and PICA. He also went this morning for the EEG and the Dr. that performed the test said there are some things on  there to be concerned about and that in 5-7 days a neurologist will be calling me to set up an appointment. I am scared out of my mind at this point. Please God don't let anything be wrong with my other baby! I don't know how much more I can take. I'm freaking out because Pedro has a lump on the back of his head that keeps getting bigger and he is always complaining of headaches. I just don't know anymore.

It seems as if my life is now being consumed with worry and anxiousness. I can't even sleep anymore even when I have the opportunity to do so. I walk around in a fog feeling sick to my stomach wondering whats going to happen when my phone rings. I just don't know anymore. I really need to get it together for my kids but sometimes I'm just scared and can't get past it.  

Monday, February 13, 2012

Just One of those Dayz

So we started Pedro on melatonin last week and it seems to be working so he is out like a light, but Tito is still going strong even though he's sick. Because of his sensory issues I can't figure out how to give him the melatonin without making him throw up and losing all of his other meds he takes.

OK so today has been one of those days. Both boys and myself are sick and its not pretty. But a few good things have happened today one is Tito wanted to take a bath and so I went into the bathroom to start the water and his sister was taking him to get his clothes and he ran back and opened the door and said" mommy don't shush the do!!!" I cant believe it that was a sentence and no one prompted him or told him what to say. Second, he was watching wonder pets and we were laughing because he stands right in front of the t.v. and it looks like the little duck Mimi is talking right to Tito and we hear him say in a little tiny voice "wringing" while the song was on and Mimi was singing at that exact time "the phone is ringing" hahahahaha! It's the little things.

Friday, February 10, 2012

Blessed Thank you God!

Today is one of those days that I am thinking how blessed we are. Tito has been talking up a storm all day. I was thinking about six months ago we couldn't understand one word out of his mouth but thanks to 6 months of speech therapy and his IPAD 2 that he got from Cookies for IPADS we can understand about 40% of what he says.

He also is loving preschool and that is huge for him. He plays alone still and has his moments when he doesn't want anyone messing with him but he will actually come up and say"Mommy ah kool".

I'm not gonna lie it's those moments that make it worth while. It's those moments that let me know it's going to be OK. I live for the little things now and thanks to my hero Tito I am more understanding and accepting and open minded and I love him for that.

I know theres no cure for Autism (so I was told ) but it's the little moments that make it so easy for a split second to forget  that he has autism. It's when he's looking at me cause he thinks I'm not paying attention and I can see him looking at me with those big beautiful blue eyes and his long eye lashes flickering and he says "lubbies mommy".

Autism will never win!!! My Tito won't let it and because of him I will never give up! Thank you my beautiful angel for all you have given to mommy for you will never know the impact you truly have on her:-)